Showing posts with label HealthHCV. Show all posts
Showing posts with label HealthHCV. Show all posts

Thursday, June 6, 2024

Perspectives on SYNC’ing

By: Ranier Simons, ADAP Blog Guest Contributor

Synchronicity 2024, referred to as SYNC 2024, was held last week in Arlington, Virigina May 29th to May 31st. It is a national conference for HIV, HCV, STIs, Harm Reduction, LGBTQ Health, and Health Equity. This is the tenth year this unique conference has been held, bringing together a diverse audience of participants. SYNC is one of few spaces where clinicians, state and local health department directors, students, researchers, social workers, community activists, patient advocates, policymakers, and even D.C. government officials are all under the same roof with access to each other. The value of creating such a space is the reason companies like Gilead Sciences, ViiV Healthcare, and Merck are sponsors. I was asked to share my personal perspectives in this week’s blog, as my attendance represented my first time SYNC’ing.

SYNC 2024
Photo Source: HealthHIV

According to the SYNC 2024 event website the SYNC 2024 theme, “Bringing SYNChronicity to Life: SYNCing the Elements of Life with Health,” reflects aligning the fundamental elements of life — earth, water, air, and fire — with the sphere of HIV, HCV, STIs, Harm Reduction, and LGBTQ health, according to the event website. Its objective was elevating health and harmony, and now I better understand why ADAP Advocacy's CEO, Brandon M. Macsata, advised me that this event was the best national conference for advocates living with HIV/AIDS.

My two primary activities at SYNC were to present data associated with the 9th National Annual Monitoring Report on HIV/HCV Co-Infection and help facilitate a panel discussion regarding Prescription Drug Advisory Boards (PDABs). Both were indelible experiences. I presented data for the National Annual Monitoring Report on behalf of Community Access National Network (CANN) in collaboration with HealthHIV. The presentation informed the audience about current issues surrounding HIV, HCV, and Harm Reduction. The collaboration resulted in an empowering and complimentary dissemination of a great deal of valuable data that was well received by the audience. The PDAB discussion was eye-opening in how a prepared slide presentation by a panel evolves into organic discussions among the panelists and audience, which adds even more value.

The wealth of opportunities for learning, networking, and inspiration at SYNC was almost overwhelming, but in a good way. The first day was filled with very focused institutes of different subjects, some of which even offered opportunities to achieve or renew certifications in things such as PrEP Navigation. The institutes covered critical problems such as HIV Criminalization, Healthy Aging, and Black Women in HIV Prevention. The Annual Monitoring Report, where I presented data, was one of those institutes. 

The remaining days were filled with extensive plenary sessions where all the participants met to learn from experts and even members of government agencies on topics such as the state of government agencies' activities surrounding healthcare delivery, health equity, syndemics, and advocacy. Outside of the large plenary sessions were many different track sessions. Upon choosing your track of interest, you could attend multiple learning sessions on various topics associated with the track. 

Bringing SYNChronicity to Life
Photo Source: HealthHIV

For example, there was an STI track. I attended session One of that track, which included presentations on black women’s sexuality and PrEP, the severe crisis of STIs like syphilis, the importance of rapid point of care (POC) testing and educating providers about effective HIV and STI testing. The speakers in that session included the Vice President of Clinical Operations at Adagio Health and the HIV Clinical Director for Baltimore Medical System, Inc. It was amazing to experience exposure to the perspectives from such varied backgrounds, all in the same room. Most importantly, I feel that they usually would all not be exposed to each other. Not only was it an unmatchable opportunity for learning for the audience, but it was an opportunity for collaboration and learning between their institutions.

Another track session I attended was a part of the LGBTQ Health Track. I decided to participate in that track session as an opportunity to be exposed to subject matter outside of usual knowledge consumption. I frequently read and research topics involving HIV treatments, prevention, and social determinants of health issues. However, I don’t often explore LGBTQ-specific health issues that are unique from the general population. The panels in this session discussed the utilization of social media to reach young men of color for HIV prevention, advocacy for transgender healthcare, and the unique lived experience of Black men who have sex with men (MSMs). 

This session was very enlightening. Until then, I was not aware of the actual number of legislative bills and other efforts nationally being put forth that are directly anti-trans. I had also never heard of GLMA. GLAM was formerly known as the Gay and Lesbian Medical Association but is now identified as GLMA: Health Professionals Advancing LGBTQ+ Equality. GLMA presented the anti-trans legislation discussion. It was equally fascinating to learn of community health groups' investments in using social media apps such as Grindr to engage in HIV prevention and education. Notably, at the end of that session, local community groups were educating panelists on ways they could be more effective in their outreach and vice-versa.

Regrettably, I did not end up spending much time perusing the poster presentations that were present. Yet, I still learned a great deal, and the lens through which I view many issues has been widened. One of the most vital themes that encompassed the entire conference is the necessity of health equity and the importance of inclusive representation in health policy as well as in medical treatment and intervention. SYNC is undoubtedly a conference full of meaning and value.

Collage of photos from SYNC 2024
Photo Source: HealthHIV

Disclaimer: Guest blogs do not necessarily reflect the views of the ADAP Advocacy Association, but rather they provide a neutral platform whereby the author serves to promote open, honest discussion about public health-related issues and updates.  

Thursday, June 6, 2019

2019 HealthHCV State of HCV Health National Survey!

By: Brian Hujdich, Executive Director, HealthHIV

HealthHCV is fielding the 2019 HealthHCV State of HCV Care National Survey(TM). This annual survey reaches providers nationwide, including hepatologists, gastroenterologists, infectious disease specialists, HIV care providers, primary care providers, and others screening for and/or treating hepatitis-C. The 2019 survey, developed with input from viral hepatitis advocacy groups, payers, and HCV care providers, builds on the findings from HealthHCV’s inaugural Report on the State of HCV Care, based on a survey of almost 200 prescribing providers involved in HCV care. The inaugural survey formed some of the first data points regarding the provision of HCV care and treatment in the U.S.

2019 HealthHCV State of HCV Care National Survey

While advances in HCV cure therapy have led to improved survival rates for patients with cirrhosis, reduced health care costs, and a reduced need for liver cancer surveillance, a more comprehensive approach to HCV care is needed to curb the epidemic, especially as the opioid crisis continues to fuel increases in new infections.

The State of HCV Care is integral to understanding and improving current HCV care and prevention efforts, as well as shaping advocacy and policy needs. There are currently few efforts to collect information on hepatitis C (HCV) care and treatment in the U.S., and these survey results serve as some of the first national data points regarding provision of HCV care. The data collected from this survey provides an opportunity for those on the front lines of HCV care to cite challenges and barriers to providing necessary services. This year’s survey will evaluate the latest impacts on HCV screening practices, treatment access and reimbursement, barriers to care, provider training needs, and integration and coordination of HCV services with behavioral health and substance use treatment.  

Your feedback is critical to shape national HCV advocacy, education, and training in 2019 and beyond that contribute to ending the HCV epidemic! In order to take the survey please press HERE.

About HealthHCV: HealthHCV’s unique role in evaluating national provider needs helped shape a robust suite of current education offerings on HCV, including the 20x20 Initiative: Increasing HCV Screening and Linkage to Care by 2020 and Addressing the Evolving Opioid and HCV Epidemics Through Community Engagement and Education.




Disclaimer: Guest blogs do not necessarily reflect the views of the ADAP Advocacy Association, but rather they provide a neutral platform whereby the author serves to promote open, honest discussion about public health-related issues and updates.

Friday, September 16, 2016

Annual National Monitoring Report on HIV/HCV Co-Infection

By: Marcus J. Hopkins, Project Director, HIV/HCV Co-Infection Watch, Community Access National Network (CANN)

The ADAP Advocacy Association is sponsoring an important community roundtable on September 22nd in Washington, DC, hosted by the Community Access National Network (CANN). The pressing issue at hand: HIV/HCV Co-Infection. The First Annual National Monitoring Report on HIV/HCV Co-Infection will present findings on the state of human immunodeficiency virus (HIV) and hepatitis C (HCV) co-infection in the United States, including a summary of the HIV/HCV Co-Infection Watch, as well as the HealthHIV/HealthHCV recently published report, State of HCV Care National Survey.

The event will be held at the Pharmaceutical Research and Manufacturers of America (PhRMA) Headquarters, located at 950 F St., NW Suite 300, Washington, DC 20004. It will be held from 3:00 PM – 5:00 PM (EST). Gilead, Merck and Walgreens are also sponsoring this event, along with PhRMA.

While both HIV and HCV are significant health issues on their own, co-infection poses a serious threat to persons living with HIV. Treating HCV in conjunction with HIV can be difficult, as many of the most popular HIV combination therapies (such as Stribild) may have serious drug interactions with some of the components of newer Direct Acting Agents (DAAs) currently available to cure HCV.

Recent spikes in HCV infections related to Injection Drug Use (IDU) have led physicians in affected areas to screen also for HIV. Perhaps the most well-publicized case involved an outbreak in Scott County, Indiana, was caught due to a sharp increase in HCV infections amongst IDUs. The outbreak also led the state’s conservative legislature to approve emergency Harm Reduction measures – namely Syringe Exchanges – in counties designated as having public health emergencies. The sixth such emergency Syringe Exchange will be opening in Clark County, this fall. Clark County, which neighbors Scott County, has seen a 63% increase in fatal drug overdoses since 2013, with 49 confirmed fatal overdoses, and another 20 pending since the beginning of the year (Maher, 2016).

The HIV/HCVCo-Infection Watch released its inaugural Report in January 2015, originally focusing only on HCV drug coverage in AIDS Drug Assistance Programs (ADAPs) and Medicaid programs. Now, nearing the end of its second year in publication, the Watch has expanded to include coverage information for the Veteran’s Affairs (VA), Harm Reduction measures (including Syringe Exchanges) to prevent the spread of infection, and regional trends, which focus on issues of drug coverage, co-infection, and legislative efforts to combat the spread of HCV. Each Report also contains the latest news in HCV science, opioid/heroin addiction, pharmaceutical updates, and HIV/HCV-related news.

HIV/HCV Co-Infection Watch

 HealthHIV’s report on the State of Hepatitis C Care National Survey was released in February 2016, and presents the findings gathered during the survey process. The inaugural survey, conducted in 2015 in conjunction with Medscape, LLC., collected data on both providers and the patient populations they serve, and made policy recommendations and observations related to increasing access to HCV care both outside and within the HIV care continuum.

HealthHCV HCV Care Survey

 While the National Monitoring Report on HIV/HCV Co-Infection event is free to attend, seating is limited. Advanced registration is required, which can be done at the following web address: https://www.123signup.com/event?id=njrck.

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Disclaimer: Guest blogs do not necessarily reflect the views of the ADAP Advocacy Association, but rather they provide a neutral platform whereby the author serves to promote open, honest discussion about public health-related issues and updates.