Thursday, September 24, 2020

COVID-19's Impact on Rural Health Services Providers

By: A. Toni Young, Founder & Executive Director, Community Education Group

In partnership with Cardea and TruEvolution, Community Education Group (CEG) is spearheading an effort to learn how COVID-19 is impacting Rural Health Services Providers (RHSPs) so they can better facilitate conversations with policymakers and advocate to expand access to resources to support client care. COVID-19 is presenting a unique set of challenges in rural communities as local providers try to tackle HIV, viral hepatitis, and substance use disorder. 

Our Vlog summarizes the work being done by CEG to address these disparities in rural communities.

A. Toni Young

To view the Vlog, visit https://www.adapadvocacy.org/urls/CANN_Video-Blog.mp4.

About Community Education Group. The Community Education Group (CEG) is a 501(c)3 not-for-profit organization working to eliminate disparities in health outcomes and improve public health in disadvantaged populations and under-served communities. CEG accomplish this by conducting research, training community health workers, educating and testing people who are hard to reach or at risk, sharing our expertise through national networks and local capacity building efforts, and advocating for practical and effective health policies that lead to social change. CEG has offices in both Washington, DC, and Shepherdstown, WV, and has recently partnered with TruEvolution, Inc. (Riverside, CA) to found the Rural Health Service Providers Network which advocates on behalf of organizations providing essential services to clients living in rural America. Donate to Community Education Group.

Disclaimer: Guest blogs do not necessarily reflect the views of the ADAP Advocacy Association, but rather they provide a neutral platform whereby the author serves to promote open, honest discussion about public health-related issues and updates.  

Thursday, September 17, 2020

Black, Gifted & COVID-19 Free

By: Guy Anthony, President/CEO, Black, Gifted & Whole Foundation

Recently, as I scrolled through the news, I froze reading a headline: “Only 6% of coronavirus deaths caused by COVID-19.” 

Suddenly unable to hear, see, or feel my surrounding, I was taken back to March on the day I began experiencing COVID-19 symptoms. I was taken back to three weeks that followed. I was taken back to the anxiety and the immense feeling of the unknown. 

I was symptomatic when I was self-diagnosed. Every day I dreaded the possibility of waking up to the realization that I was becoming sicker by the minute. Would my symptoms be taken seriously? Would I be able to see a doctor before my symptoms got too severe? Would a hospital treat me with the same care knowing I have a preexisting condition?

I am a Black, queer, HIV-positive man living in America. I have lived with HIV for 15 years. I have learned that society is not built to protect me. Laws are not made to protect me. Healthcare is not built to protect me. 

When the pandemic started, I immediately became concerned about getting food and my daily medications. In order to keep my immune system healthy, more so than the average person, I rely on fueling my body with healthy foods and religiously taking my prescribed medicine. I also know that healthcare in the United States is segregated. As a Black, queer, HIV-positive man, I am almost guaranteed to get inadequate healthcare compared to my white, heterosexual, HIV negative male counterparts. Black men are more likely than white men to have their pain ignored or deemed not severe. Queer men are more likely than heterosexual men to be refused care and abused in medical settings. HIV positive patients are more likely than HIV negative patients to have other health conditions go undiagnosed or untreated.

I live daily in fear that being Black, being queer, and being-HIV positive negatively influence the healthcare I receive. As doctors and medical professionals dealt with an influx of COVID-19 patients, priority was given to patients who were the most ill. I worried that by the time I got “bad enough” to receive care, my HIV status and weakened immune would complicate my care, and it would be too late. 

Fortunately, after three weeks, my immune system fought off the virus. I tested negative. A small sense of relief washed over me. But I still carry the weight of knowing my Blackness, my queerness, and my HIV-status puts me at risk when I am walking down the street, when I tell someone who my partner is, and when I develop any illness in the future, including a possible recurrence of COVID-19. 

After a few minutes of staring at the headline that brought me back to March, I grounded myself. As I sat with the article proclaiming just 6% of coronavirus deaths are caused by COVID-19, I knew this number would be used to minimize deaths of people similar to me who were HIV-positive at the time of their death. HIV may have complicated their deaths, but if it were not for COVID-19, they would still be alive. 

In light of what I experienced, we created the The BLACK BOX Care Program to address the myriad of concerns affecting Black queer students during the COVID-19 global pandemic. Many student have been displaced and are in need of tangible support.  Each box varies and is stocked full of our 5-year anniversary merchandise, offerings from Black Queer authors such as Yolo Akili and George Johnson, and additional contributions from Black Queer entrepreneurs like The Blairisms, THRIVE SS, The Mindful Techie & The LAMDA Lounge. We have already sent out 50 Blackboxes to students in need.

The future of the COVID-19 pandemic is unclear. No one knows precisely when it might end. There is a possibility that I can be infected again. Thousands of people, similar to me, are dying weekly. However, I realize while it can be easy to live in immense fear and despair, I look towards the community, the encouragement, and the positivity at the Black, Gifted, and Whole Foundation. It gives me the motivation and inspiration to keep moving forward. 

About Black, Gifted & Whole Foundation: The Black, Gifted & Whole Foundation (BGW) represents a revolutionary attempt to improve the collective narrative of Black Queer folx. Their mission is to empower, educate and mobilize Black Queer folx by acknowledging, celebrating and affirming their whole selves. BGW believes that Black Queer folx are multifaceted and deserve innovative and meticulously researched approaches when being engaged. They believe that Sexual Health + Higher Education + Access to Resources can drastically improve the trajectory of their lives. BGW — conduct intake of — young Black Queer folx while in High School, College, or Graduate School, assess their needs, aspirations and sexual health awareness and provide them with financial and emotional support. Donate to Black, Gifted & Whole Foundation.

Black, Gifted & Whole

Disclaimer: Guest blogs do not necessarily reflect the views of the ADAP Advocacy Association, but rather they provide a neutral platform whereby the author serves to promote open, honest discussion about public health-related issues and updates.  

Thursday, September 10, 2020

Together, We Can Lower Out-of-Pocket Costs & Increase Access to Healthcare

By: Amy Niles, Executive Vice President, PAN Foundation 

Your voice as a patient advocate, and the voices of the patients you support, are critically important when it comes to health policy. You have experiences to share, perspectives to provide and valuable input on proposed policy solutions. Healthcare policy is only effective if it addresses patient needs and improves access to and affordability of treatment. 

That is why the PAN Foundation has launched its online advocacy action center – to provide a central place for information about effective ways to communicate with elected officials, and importantly, to be a key destination for campaigns and advocacy initiatives focused on improving access to and affordability of treatment. 

The Patient Pays Less
Photo Source: PAN Foundation

Our first campaign addresses the need to lower out-of-pocket costs for prescription medications in Medicare Part D. In one click, we make it easy for you or your constituents to send an email to their elected officials, letting them know that relief from out-of-pocket costs for millions of Americans is desperately needed – NOW! Information about this campaign is included below. 

My ask of you?

As soon as you can, please encourage your patient communities to visit PAN’s advocacy action center, learn more about this campaign, and take immediate action by writing their members of Congress. It is easy, important, and needed as we head into the fall months.

If you need any assistance or have ideas for encouraging patients to share their stories, and their voices, do not hesitate to reach out to me. Learn more at https://www.panfoundation.org/become-an-advocate/.

Thanks, as always, for all you do. 

Disclaimer: Guest blogs do not necessarily reflect the views of the ADAP Advocacy Association, but rather they provide a neutral platform whereby the author serves to promote open, honest discussion about public health-related issues and updates. 

Thursday, September 3, 2020

COVID-19 Vaccination Clinical Trials MUST Include PLWHAs

By: Sarah Hooper,  intern, ADAP Advocacy Association, and rising senior at East Carolina University

As the COVID-19 pandemic enters its ninth month, the world is still struggling to create a vaccination and find medication to treat the virus properly. President Trump has been saying for months that the vaccine trials and research are going well, and America should expect a vaccination by the end of the year. While this sentiment is hopeful (and considered by many to be driven by politics and not science), it does exclude the major process involved in vaccination trials: testing trials, which can take months to years. 

COVID-19 Vaccine
Photo Source: health management.com

Vaccination trials have begun around the world but are a slow process. One vital aspect of these trials is testing and planning for the immunocompromised population, who are often most affected by the diseases typically vaccinated for. In a vaccination trial for COVID-19 by Moderna Inc., the biotechnology company initially excluded people living with HIV from COVID-19 vaccine trials (Smart Brief).

After pressure and lobbying from HIV advocates, the biotech company expanded their vaccine trials to include HIV positive persons. 

“Moderna Inc. is committed to working with all communities who could benefit from our COVID-19 vaccine. While we had always planned to evaluate mRNA-1273 in people living with HIV (PLWH) in a separate study, as we are doing for other participant groups, we have heard the preference of the community to be included in the ongoing Phase 3 study in the U.S.,” Moderna Inc. shared on their Twitter account on Aug. 5. (Twitter).

Moderna
Photo Source: Moderna

Those with underlying health conditions such as HIV and those above the age of 50 are at highest risk for COVID-19. According to the U.S. Centers for Disease Control & Prevention (CDC), nearly half of people in the United States who are diagnosed with HIV are 50 and older. (CDC)

As COVID-19 is a relatively new virus, the long-term effects of it are unknown on those with HIV. As of now, there is no evidence to suggest those with HIV have an increased risk of infection and severity of illness if they were to contract COVID-19, according to the Journal of the International AIDS Society. 

“It is thought that people living with HIV who have achieved viral suppression through antiretroviral treatment and do not have a low CD4 count will be affected by COVID-19 in a similar way to what a person not living with HIV would be, based on other coronavirus-caused disease outbreaks such as SARS (caused by SARS-CoV-1) and MERS (caused by MERS-CoV), where only a few cases of mild disease among people living with HIV were reported,” said JIAS. (JIAS) 

In an opinion article written for the website Devex in late May of this year, Mitchell Warren makes an excellent observation about the connection between the COVID-19 vaccination trials and what we can learn from previous experience with the HIV responses around the world. 

“As we know so well from over 40 years of experience in the HIV response, developing and delivering prevention and treatment options at scale is essential to containing an epidemic. But no durable and sustainable end to any epidemic is possible without a vaccine,” Warren said. (Devex)

Vaccine trials are expected to continue through the end of the year and into 2021, until a proper vaccination is discovered for COVID-19. Until then, the CDC recommends all those with underlying health conditions such as HIV take extra precautions while going out in public and conversing with others. It is equally important the PLWHA not be excluded from the clinical trials for any COVID-19 vaccination

References:

  • Moderna. (2020, August 05). Today, we are sharing an important update about our protocol for the Phase 3 COVE Study of mRNA-1273, our vaccine candidate against COVID-19. pic.twitter.com/jigTXUi9v2. Retrieved August 26, 2020, from https://twitter.com/moderna_tx/status/1291056643464192001?ref_src=twsrc^tfw|twcamp^tweetembed|twterm^1291056643464192001|twgr^
  • People with HIV to join Moderna COVID-19 vaccine trial. (2020, August 10). Retrieved August 26, 2020, from https://www.smartbrief.com/branded/D4C8EBAD-9C67-4D55-869C-CC2C8F893F9E/83E1E967-BCC2-4A2E-AF19-D2FCF2C8EBF2
  • Warren, M. (2020, May 27). Opinion: To accelerate search for COVID-19 vaccine, look to HIV and act globally. Retrieved August 26, 2020, from https://www.devex.com/news/opinion-to-accelerate-search-for-covid-19-vaccine-look-to-hiv-and-act-globally-97267
  • What to Know About HIV and COVID-19. (n.d.). Retrieved August 26, 2020, from https://www.cdc.gov/coronavirus/2019-ncov/need-extra-precautions/hiv.html
  • What you need to know. (n.d.). Retrieved August 26, 2020, from https://www.iasociety.org/covid-19-hiv
Disclaimer: Guest blogs do not necessarily reflect the views of the ADAP Advocacy Association, but rather they provide a neutral platform whereby the author serves to promote open, honest discussion about public health-related issues and updates. 

Thursday, August 27, 2020

An America on the Precipice of a COVID-19 Disaster

By: Marcus J. Hopkins, Policy Consultant & Guest Contributor

For those of us who grew up in the 1980s and ‘90s, one of the biggest concerns about having sex was the fear of contracting HIV. But, it wasn’t just having sex we were afraid of, in the beginning – it was pretty much every activity.

In the beginning years, we didn’t really know how it was contracted. Was it airborne? If we didn’t wear masks and essentially biohazard suits in hospital rooms, were we going to get it and end up just like “them” – the “others” who fell victim to the devastation of the AIDS epidemic sweeping across the country and taking no prisoners?

We didn’t know not know how it was spread; we didn’t know how to treat it. Every other week, we heard rumors of a cure; of some expensive treatment in Mexico, or Brazil, or Germany that could cure AIDS, but the U.S. government just didn’t want us to know. Desperate people weren’t given hope; they were given expiration dates.

I was just a kid, growing up in the middle of the HIV epidemic of the 1980s and ‘90s, and, to this day, I remember being terrified of the images we saw on television and in every magazine. Worse still, I remember being pissed off at the thought that our federal government sat back and did virtually nothing; said virtually nothing. Although AIDS was identified in 1981 (at GRID – Gay-Related Immune Deficiency), then-President Ronald Reagan never publicly mentioned the word until a press conference in September 1985, a full four years too late, and many dollars too short.

When the COVID-19 pandemic first made its way to the United States, people who had lived through the AIDS epidemic of the ‘80s and ‘90s began making comparisons between HIV and COVID-19. Those comments were almost immediately shouted down by those who were offended by the comparison, insisting that it made light of people living with HIV. Those of us who saw and commented on the parallels were castigated for our poor taste and lack of empathy.

Donald J. Trump
Photo Source: IBTimes UK

Turns out, we were right.

The spread of the COVID-19 pandemic throughout the U.S. mirrors that of the HIV epidemic in many ways:

  • We were, and still are, plagued (as it were) by uncertainty about how the disease is spread, contained, and treated; 
  • A certain segment of Americans is pinning the blame on a vulnerable minority population for “causing” or “creating” the disease, and discriminating and, at times, literally bashing people whom they blame for bringing it here (read: “China Virus” or “Wuhan Flu”);
  • We have a White House occupant who is neither willing, nor able to admit the severity of the pandemic, and is focused more on his own venality and “ratings” than on the lives of the Americans he was stupidly elected to represent;
  • We have an endless supply of snake oil salesmen peddling fake cures, fake preventative devices, and frankly shitty “medical” advice to a population that is both frightened, and super-credulous;
  • We have a patchwork approach to dealing with the virus, in no small part because we have all but gutted our public health systems in none-urban areas;
  • We have an overworked, underpaid, and increasingly frustrated and disheartened frontline medical staff that hasn’t seen a break since March, and gets to watch idiots wander around in public without masks, like nothing is going to happen to them;

The similarities between the two epidemics exists in no small part because, as with the HIV epidemic, our federal government has been led to failure by an incompetent administration, hellbent on hamstringing medical professionals and proffering false hope of a quick turnaround, optimism that we’re turning a corner, and outright lies, when what the American people need is honesty, instead of a lying carnival barker.

It isn’t just HIV survivors who see these parallels – epidemiologists have recognized this pattern of failure in America’s healthcare system and governance:

"If you put a map of the HIV epidemic over a map of the worst coronavirus hotspots, they look almost identical,” said Jared Baeten, the vice dean of the University of Washington’s School of Public Health and an HIV epidemiologist for more than a decade. “COVID is becoming just another disease that travels along the fault lines of the disparities in our society. (Hobbes, 2020)

A lot of HIV researchers are exasperated,” said Greg Millett, the vice president and director of public policy for amfAR, the Foundation for AIDS Research. “We’re old enough to have lived through the HIV response, and we’re watching the same mistakes taking place with COVID. (Hobbes, 2020)"

It’s no accident that the most trusted man in America – at least, trusted by intelligent Americans – is Dr. Anthony Fauci, one of the preeminent researchers and doctors of the HIV epidemic. He has long been honored as a beacon of integrity and leadership throughout the course of the HIV/AIDS epidemic.

Face consisting of the 50 states wearing mask
Photo Source: homelandprepnews.com

For those of us old enough to remember watching friends and loved ones die of HIV/AIDS, watching the same mistakes being repeated, only with greater incompetence and with a brazen refusal to do what’s necessary and right, is traumatic. One of the first casualties I knew personally was someone whose adult life was dedicated to serving people living with HIV:

Garry Bowie, with whom I collaborated for the Long Beach AIDS Foundation, in Long Beach, CA, passed away in the early months of the pandemic. He was a man in whom I found a trusted confidante, and his husband, Jeff Wacha, has been soldiering on as best he can.

After Garry’s passing, I wept for the first time since my partner and I separated. I can’t imagine what Jeff is experiencing, and worse, still, how infuriated he must be to watch idiots wandering around without masks, like their lives aren’t literally on the line.

So, yes – the HIV and COVID-19 epidemics share many similarities, and to anyone who says that I, as someone living with AIDS, shouldn’t say that, because it’s insensitive, I invite them to shut the hell up and pay better attention.

References:

  • Hobbes, M. (2020, August 11). Will America Let COVID-19 Become The Next HIV? Huffington Post. https://www.huffpost.com/entry/will-america-let-covid-19-become-next-hiv_n_5f31ad0ec5b6960c066af7d1?ncid=engmodushpmg00000004

Disclaimer: Guest blogs do not necessarily reflect the views of the ADAP Advocacy Association, but rather they provide a neutral platform whereby the author serves to promote open, honest discussion about public health-related issues and updates. 

Thursday, August 20, 2020

COVID-19 Essential Patient Resource: Pharmacists

By: Glen Pietrandoni, RPh, AAHIVP, VP Industry Relations, AVITA Pharmacy

Pharmacists have been on the front line of the COVID-19 response to ensure patients remain safe and continue to receive essential medicines on time. Pharmacists are the most easily accessible healthcare professionals in the community. No appointments are necessary, and pharmacists don’t charge to speak with them!

Man consults with pharmacist

Since the pandemic began, pharmacists have spent a lot of time educating people about COVID-19, and reinforcing messaging about how to reduce the spread, social distancing, hand washing, masks, etc. This is especially important where some may think they don't have to worry about the virus, or if it is not yet present in their community. Let’s face it, there’s a lot of mixed messages around the country. Pharmacists can help provide trusted information to help you and your family, absent of political views or stigma.

Forty years of helping people thrive within the context of HIV treatment and prevention gives pharmacists and patients an advantage today as we have learned how to care for each other during difficult times in the past. Most importantly, the need to continue a high rate of adherence to medication does not change because of this disruption in our daily routine due to the coronavirus. We are all champions for U=U. To stay undetectable during a pandemic of this new virus, we cannot let up on being adherent to the drugs for the old virus. YOU CAN DO THIS, and pharmacists can help.

I have often written and spoken about the importance of having a relationship with your pharmacist and pharmacy staff. That could be as simple as making a point of engaging in a simple conversation, for instance, asking their name, or asking if you can ask questions from time to time.  I’ve mentioned in the past that it’s more common to know the name of the person that cuts your hair or the barista at Starbucks, than to know the name of your pharmacist. If the pharmacy you are using pushes back or doesn’t make that easy for you, then you might want to consider looking for a pharmacy/pharmacist that understands HIV and YOU. You deserve that courtesy!

Let’s talk about how pharmacist can help you during the COVID-19 pandemic and beyond.

Pharmacists wearing COVID-19 masks

Pharmacies have remained open during the outbreak

You may need to check if the operating hours have changed, but pharmacists are considered essential workers and have been eager to accommodate unusual circumstances when possible. Try to plan ahead for refills if possible, as the pharmacies might be busier than usual.  Also, if your insurance or ADAP (AIDS Drug Assistance Program) plans require renewal or recertification, check into this before you are out of medication to avoid delays. Many pharmacists can help you if you have questions. With COVID-19  exceptions are being made to allow grace periods and extensions.

Consider requesting 90-day refills if the insurance coverage or ADAP allows.

Pharmacies often offer delivery options

Pharmacies continue helping people – particularly the most vulnerable – get prescriptions filled online or remotely, and have medications delivered to your home. Check with you pharmacy about options and potential cost of delivery.

By helping you stay healthy

Pharmacists can speak with you regarding your medication questions because they can see your prescriptions from all your providers in one place. Pharmacists can help you at times when you need prescription refills by contacting your doctors for you. During this time, providers are also very busy and difficult to reach. Pharmacists work closely with providers and could save you some time and stress.

Did you know you pharmacist can synchronize your medications to minimize the numbers of trips to the pharmacy or deliveries? Why not get all your medications at one time. That you also help you stay adherent and not run out of medication.  Makes sense! Another part of the pharmacists’ job is to check for drug interactions, monitor for potential adherence challenges and help you manage side effects or adverse reactions. 

Many pharmacies have apps to help people manage their health and medications. These have become more useful during COVID-19, allowing patients to manage medications through alerts for refills and even dosing reminders. We’re all a little more stressed than usual, so it might be worth trying these out.

By helping you save money 

Some people have prescription copays (money due to the pharmacy paid by the patient). It’s a good idea to ask you pharmacist (you know their name now, right?) if they are aware of ways to save money on out-of-pocket costs.

Now that you know your pharmacist’s name, it will be nice to speak to a friendly voice every month or so. In this time of COVID-19, isolation and depression can be a concern for so many people. As a pharmacist myself, I know that building relationships with my patients over time allowed me to check in with them monthly. In that interaction, our relationship provides some comfort and opens the door for questions and conversations. My favorite question to my patients were things like “how’s your dog?”, or “do you have a restaurant recommendation?” In doing this, I get a sense of how my patients were doing emotionally and is an indirect way to check on their well-being. Of course, with coronavirus, it is so important to stay connected, the questions are more directed toward staying safe and taking precautions. Because the relationship exists, this is an easy pivot based on mutual trust.

At this time, we can all use a helping hand and a friendly voice. Pharmacists can be that someone that fits this role during covid and long after.

Click here to download the "Talking to Patients About Access to Medication - A New Resource" published by the Community Access National Network (CANN) and the Partnership for Safe Medicines (PSM).

Disclaimer: Guest blogs do not necessarily reflect the views of the ADAP Advocacy Association, but rather they provide a neutral platform whereby the author serves to promote open, honest discussion about public health-related issues and updates.

Thursday, August 13, 2020

Community-Based, Nonprofits Address COVID-19's Impact on Marginalized Communities Living with HIV/AIDS

By: Brandon M. Macsata, CEO, ADAP Advocacy Association

The ADAP Advocacy Association announced earlier this week that it had awarded micro grants to eight community-based, nonprofit organizations working to address the impact of the Coronavirus (COVID-19) on marginalized communities living with HIV/AIDS. The micro grants will assist these organizations raise awareness on the intersection between the global pandemic and HIV/AIDS in the United States.

We have devoted significant resources to providing relevant, timely information on COVID-19 and its impact on people living with HIV/AID since the global pandemic reached the United States. Our COVID-19 Community Grants initiative will continue to do so.

COVID-19

The grantees include:

BGW represents a revolutionary attempt to improve the collective narrative of Black Queer folx. Their mission is to empower, educate and mobilize Black Queer folx by acknowledging, celebrating and affirming their whole selves. BGW believes that Black Queer folx are multifaceted and deserve innovative and meticulously researched approaches when being engaged. They believe that Sexual Health + Higher Education + Access to Resources can drastically improve the trajectory of their lives. BGW — conduct intake of — young Black Queer folx while in High School, College, or Graduate School, assess their needs, aspirations and sexual health awareness and provide them with financial and emotional support. Donate to Black, Gifted & Whole Foundation.
CEG is a 501(c)3 not-for-profit organization working to eliminate disparities in health outcomes and improve public health in disadvantaged populations and under-served communities.  CEG accomplish this by conducting research, training community health workers, educating and testing people who are hard to reach or at risk, sharing our expertise through national networks and local capacity building efforts, and advocating for practical and effective health policies that lead to social change. CEG has offices in both Washington, DC, and Shepherdstown, WV, and has recently partnered with TruEvolution, Inc. (Riverside, CA) to found the Rural Health Service Providers Network which advocates on behalf of organizations providing essential services to clients living in rural America. Donate to Community Education Group.
Founded in the City of Hartford, CT, in 1986, LCS provides culturally responsive care and prevention services to people living with HIV/AIDS and their communities. Beginning it's operations in the height of the HIV/AIDS epidemic,  LCS is the only Latino led organization with it's experience providing direct services to marginalized PLWH and other underrepresented populations of color throughout Hartford, Middlesex and Tolland Counties. Latino Community Services recognizes the challenges posed by COVID-19 and the impact that the virus has had worldwide. Throughout these challenging times, they remain committed to their clients and the public as they continue to adapt and evolve throughout the outbreak and recovery phases. Donate to Latino Community Services.  
Let's Kick ASS — AIDS Survivor Syndrome has been empowering HIV Long-Term Survivors to thrive since 2013. They are an all-volunteer, grassroots movement, united in compassion, committed to action, and insisting on visibility. Let's Kick ASS started by and for people living longest with HIV/AIDS to address an unmet need — addressing the present-day psychosocial ramifications of living in the aftermath of the early AIDS pandemic. They are the originator and lead sponsor of the June 5th "HIV Long-Term Survivors Awareness Day" #HLTSAD. Donate to Let's Kick ASS — AIDS Survivor Syndrome.
RAD Remedy is a national grassroots organization dedicated to connecting trans, gender non-conforming, intersex, and queer (TGIQ) folks to accurate, safe, respectful, and comprehensive care. The Referral Aggregator Database (RAD) is a comprehensive and nationally-collaborative database that combines the referral lists of trusted community organizations and the detailed reviews of TGIQ clients. In addition to the organization's database activities, RAD Remedy provides community-informed policy and practice guidance and consulting to organizations, agencies, and individual providers looking to help TGIQ communities thrive. Donate to RAD Remedy.
RAHMA addresses HIV, AIDS, Female Genital Mutilation/Cutting (FGM/C), Sexual Health and Gender-Based Violence (GBV) in faith communities through education, advocacy, and empowerment. Their programs include a retreat for HIV+ Muslims and their allies, sexual health & HIV trainings and development og a virtual FGM/C toolkit for survivors and health care providers, created in collaboration with the George Washington University, Milken School of Public Health hosted at https://fgmtoolkit.gwu.edu. RAHMA is also the founder of National Faith HIV & AIDS Awareness Day, which unites Muslim, Christian, Jewish, Buddhist, Sikh, Hindu and Baha'i faiths to take a stand against stigma in their congregations and raise awareness on HIV and AIDS. Donate to Reaching All HIV+ Muslims in America.
SAYA is an empowerment focused intimate partner violence prevention and intervention non-profit organization in Miami, FL. SAYA's programming includes direct assistance like escape planning and protective order assistance, as well as policy advocacy campaigns, referral for support services, and linkage to care and victim services navigation. SAYA currently relies on a word-of-mouth model in order to ensure the safety of our clients. Through the COVID pandemic, SAYA has also partnered with Panera Bread end night donations to provide to IPV survivors facing homelessness or the risk of homeless. Donate to Simply Amazing You Are.

SBPAN is a non-profit 501(c)(3) organization that was created in 2018 to improve health, social, and economic conditions facing Black communities living in the U.S. South. SBPAN's mission is to improve health outcomes and reduce social, and economic disparities impacting Black communities living in the U.S. South through training, education, advocacy and mobilization. SBPAN is committed to building and strengthening programs and partnerships focused on improving the health and quality of life for diverse populations of Black southern communities in the U.S., specifically those living at the intersection of marginalized Black communities including, but not limited to those who are same gender loving (SGL), lesbian, gay, bisexual, transgender (LGBT), youth, women, and persons over the age of 55. Donate to Southern Black Policy and Advocacy Network.

The ADAP Advocacy Association will work with these grantees to disseminate relevant information to community stakeholders over the few months. 

Disclaimer: Guest blogs do not necessarily reflect the views of the ADAP Advocacy Association, but rather they provide a neutral platform whereby the author serves to promote open, honest discussion about public health-related issues and updates.