Showing posts with label immunocompromised. Show all posts
Showing posts with label immunocompromised. Show all posts

Thursday, April 7, 2022

A Rare Personal Appeal to My POZ Brothers & Sisters; Please Protect Yourself

By: Brandon M. Macsata, CEO, ADAP Advocacy Association

For nearly 15 years, I've had the distinct honor of serving as the CEO of the ADAP Advocacy Association. The position has afforded me the opportunity to advocate for greater access to care and treatment for people living with HIV/AIDS, as well as to encourage patients to become stronger self-advocates, and also to mentor some new advocates along the way. And although it is a rare occurrence for me, today I'm making a personal appeal to my POZ brothers and sisters to protect themselves against Covid-19. Please get vaccinated, and boosted!

Over the weekend, and only after playing the "rona-dodge-ball" game for over two years, my luck finally ran out and I tested positive for Covid-19. Last year, I had received both series of the Pfizer–BioNTech Covid-19 vaccine, as well as the first booster shot. I did so to protect myself as an immunocompromised patient, but more importantly to protect my son, Sebastian, who is too young to be vaxx'd. In retrospect, it was the best thing that I could have done for both him and me. 

My ongoing recovery from Covid-19 has also been helped with a prescription for Merck's monoclonal antibody, called molnupiravir. That, and a lot of fluids and rest.

Although vaccines don't guarantee full protection against acquiring Covid-19, they most certainly do provide undeniable protection after testing positive. I have experienced 48-hours of severe Flu-like symptoms, but it could've been much worse if I had been unvaccinated.

Too many people living with HIV/AIDS remain unvaccinated, and it is concerning to me. We've witnessed enough needless suffering from this coronavirus, and far too many deaths. Please don't ignore the facts made available by the U.S. Centers for Disease Control & Prevention on the rates of Covid-19 cases, associated hospitalization, and deaths by vaccination status. The broader issue isn't about protecting you from SARS-CoV-2 infection, but rather what will happen if you do indeed get it. It is undeniable the full vaccine series and booster is very likely to keep you out of the hospital, and more importantly, out of the funeral home.

Rates of COVID-19 Cases and Deaths by Vaccination Status
Photo Source: CDC

My personal appeal comes in response to recent troubling conversations about vaccination hesitancy; one was with an unvaccinated young, African-American male, and another with an unvaccinated middle-aged, white female. The former believed the Covid-19 vaccinations actually cause people to get the coronavirus, and not provide any protection. The latter argued the unvaccinated were actually faring better against Covid-19 than their vaccinated (and boosted) peers. Neither of these beliefs could be further from the truth, but they exist. Unfortunately, a lot of misinformation is fueled by certain cable news outlets, social media-fueled conspiracy theories, and ill-informed politicians with bad hair lusting over sound bites.

The intersection between the HIV/AIDS epidemic and the Covid-19 pandemic has become the new normal. A recent headline in Business Insider read, "Over the last four decades, HIV/AIDS has killed at least 700,000 Americans. COVID-19 has killed more in two years." We've previously been down this road, together. So let's learn from the past!

The science and technology behind the current vaccinations against Covid-19 are deeply rooted in the same life-saving therapies we rely on to keep us all healthy...and alive! Why not embrace the Covid-19 vaccination as an extension of your HIV-related care and treatment? Why not trust in the advent of the medical and treatment advances to keep you healthy? Why not take a leap of faith the same way we'd collectively do, if a cure for HIV is eventually discovered?

There could be numerous reasons why protecting yourself against Covid-19 is important. For me, especially as a single parent, it is my son. The mental health toll that this pandemic has placed on me cannot be understated with respect to him. I lay awake at night playing the what if game. If something happens to me, then who will care for him? If I test positive, then will I expose him to this terrible illness? If he gets sick, then will he end up in the pediatric intensive care unit? What I do know, getting that jab in my arm is my best line of defense.

Sebastian Ryan Macsata

In other words, our choices have consequences.

If you're HIV-positive and still unvaccinated, then please... please... please protect yourself by getting vaccinated against this potentially deadly virus. Talk to your physician. Talk to your pharmacist. Talk to your social worker. Talk to your clergy. Talk to your vaccinated peers. I invite you to email me and let's set-up a time to talk about why it is so important to protect yourself and the people important to you. You're important to me, and that's why I'm making this rare appeal.

Disclaimer: Guest blogs do not necessarily reflect the views of the ADAP Advocacy Association, but rather they provide a neutral platform whereby the author serves to promote open, honest discussion about public health-related issues and updates.

Thursday, September 9, 2021

#YourVaccineIsWaiting Public Awareness Campaign Targets Marginalized Groups Living with HIV/AIDS

By: Brandon M. Macsata, CEO, ADAP Advocacy Association

The ADAP Advocacy Association recently launched its public awareness campaign - 'Your Vaccine Is Waiting' - targeting marginalized groups living with HIV/AIDS on their need to get vaccinated against Covid-19. Designed to raise awareness, it came in response to learning that numerous segments of the HIV community were among those characterized as vaccine hesitant. The campaign includes four public service announcements, produced by Brandagement, LLC. 

#YourVaccineIsWaiting

According to the World Health Organization, HIV increases the risk for severe Covid-19 by six percent (6%) and the risk of dying of Covid-19 in the hospital by thirty percent (30%).[1] Yet, vaccine hesitancy among the HIV community remains a very real issue in the United States, as well as abroad in other countries.

#YourVaccineIsWaiting continues our organization's commitment to focusing on the intersection between these two ongoing epidemics. Earlier this year, we blogged about the importance of the immunocompromised getting vaccinated against Covid-19. Fast-forward to now, four amazing advocates living with HIV/AIDS were asked to share their personal perspectives on why getting the jab was important to them, but also for the marginalized groups they represent. 

Tez Anderson, a long-term survivor living with HIV, shares why he decided to get vaccinated against Covid-19. He resides in San Francisco, California. Tez’s message aims to help convince long-term survivors to get vaccinated and further protect themselves.

Tez Anderson

In urban cities with large LGBTQ communities, HIV and Covid-19 has presented dual challenges for older residents. Listen to his message to the long-term survivor community: https://www.youtube.com/watch?v=s9Z0qiwoe00. 

Jen Laws, a transgender community organizer living with HIV, shares why he decided to get vaccinated against Covid-19. He resides in Slidell, Louisiana. Jen’s message aims to help convince the transgender community to get vaccinated and further protect themselves. 

Jen Laws

According to the Williams Institute, among transgender people 25.9% report being in poor health, 32.2% have not seen a medical provider in the last year due to cost, and 34.6% expressed their gender identity could result in denial of quality care. Listen to his message to the transgender community: https://www.youtube.com/watch?v=8W_ZmVDxO74&t=259s.

Michelle Anderson, a community activist and policy associate living with HIV, shares why she decided to get vaccinated against Covid-19. She lives in Waxahachie, Texas. Michelle’s message aims to help convince African Americans to get vaccinated and further protect themselves.

Michelle Anderson

In states with large urban communities, Covid-19 has disproportionately impacted African Americans. Listen to her message to the African American community: https://www.youtube.com/watch?v=7AJ440_kE68&t=213s.

Jonathan J. Pena, MSW, licensed clinical social worker associate living with HIV, shares why he decided to get vaccinated against Covid-19. He lives in Morrisville, North Carolina.

Jonathan J. Pena, MSW

There are over 250,000 Hispanic/Latino Americans living with HIV/AIDS in the United States. One in five new HIV diagnosis in the United States were among Hispanic/Latino men (22%). Listen to his message to the Hispanic/Latino community: https://www.youtube.com/watch?v=mPWXIonBtTI&t=233s.

Why is our ongoing public awareness campaign important? According to research conducted by Johns Hopkins Medicine, Pfizer/BioNTech's vaccine induces a robust immune response in people living with HIV.[2] 

“Previous research has suggested a suboptimal response to COVID-19 vaccines in people living with HIV; however, these studies did not fully characterize and define that response, both for cellular [where the immune system directly attacks infected cells] and humoral [where the immune system circulates virus-fighting antibodies] immunity,” says study senior author Joel Blankson, M.D., Ph.D., professor of medicine at the Johns Hopkins University School of Medicine. “What we found with the widely used Pfizer/BioNTech vaccine was just the opposite, as it induces robust immune responses in people living with HIV comparable to those seen in healthy people.”[3]

The HIV community has waited decades for the development of a vaccine to defend against acquiring the human immunodeficiency virus, and yet we have one available for the other ongoing epidemic. SARS-CoV-2 has already taken 659,813 souls (and counting) from us in the United States, alone. Our community must meet the challenges presented by Covid-19 with the same intensity and rigor that we've done in the fight against HIV/AIDS over the last forty years. That is why, #YourVaccineIsWaiting.

[1] World Health Organization (2021, July 15). WHO warns that HIV infection increases risk of severe and critical COVID-19. Retrieved online at https://www.who.int/news/item/15-07-2021-who-warns-that-hiv-infection-increases-risk-of-severe-and-critical-covid-19.
[2] Johns Hopkines Medicine (2021, August 11). COVID-19 NEWS: Johns Hopkins Medicine Study Shows Vaccine Likely Protects People with HIV. Retrieved online at https://www.hopkinsmedicine.org/news/newsroom/news-releases/covid-19-news-johns-hopkins-medicine-study-shows-vaccine-likely-protects-people-with-hiv.
[3] Johns Hopkines Medicine (2021, August 11). COVID-19 NEWS: Johns Hopkins Medicine Study Shows Vaccine Likely Protects People with HIV. Retrieved online at https://www.hopkinsmedicine.org/news/newsroom/news-releases/covid-19-news-johns-hopkins-medicine-study-shows-vaccine-likely-protects-people-with-hiv.

Disclaimer: Guest blogs do not necessarily reflect the views of the ADAP Advocacy Association, but rather they provide a neutral platform whereby the author serves to promote open, honest discussion about public health-related issues and updates.