Thursday, May 28, 2020

Missouri Governor Issues Proclamation on HIV/AIDS

By: Sarah Hooper,  intern, ADAP Advocacy Association, and rising senior at East Carolina University

In a recent proclamation by Republican Missouri Governor Michael L. Parson, the month of April was designated HIV Awareness Month. He is the first governor to issue a proclamation acknowledging the national "Ending the HIV Epidemic: A Plan for America." The Missouri proclamation references testing (diagnosis), treatment and prevention.

The Ending the HIV Epidemic ("EHE") plan - announced in 2019 - was developed by agencies across the U.S. Department of Health and Human Services (Offices of Infectious Disease). EHE provided 57 geographic focus areas where HIV transmission occurs at a high rate, and Missouri is one of only seven entire states that is a jurisdiction of focus. The goal of the EHE is to reduce new HIV infections by 75% by 2025 and by at least 90% by 2030 by focusing on four pillars: prevention, diagnosis, treatment, and outbreak response by working with programs, resources and the infrastructure of HHS agencies and offices nationwide (Offices of Infectious Disease).

Nationally, HIV/AIDS Awareness Month is usually recognized in December, but Governor Parson chose to hold the month of recognition in April. Missouri has 447 annual HIV diagnoses as of 2018 and estimates 12,529 total people living with diagnosed HIV. However, only 87% have knowledge of their HIV status, leaving many more individuals who may be living with the virus and completely unaware (CDC).

When left undiagnosed, HIV positive individuals can transmit to others unknowingly and the virus may progress within their own bodies to the point of serious consequences. Governor Parson addresses diagnosis in his proclamation as one of the four pillars vital to addressing the HIV epidemic in America.

A resolution in support of the HIV Viral Load Suppression in Improving Health Outcomes and Reducing Transmission was adopted by many members of the National Lieutenant Governors Association ("NLGA") in March of 2019. State governors who sponsored the resolution included Wisconsin, Hawaii, Delaware, Missouri, Virgin Islands, Kansas and Vermont.

The sponsorship of Missouri’s Lt. Governor Mike Kehoe may have helped to push the Missouri Governor’s recent proclamation to light and stressed the importance of HIV awareness. The NLGA resolution reads, in part:

“Whereas, over 1.2 million people living in the United States are infected with HIV, and one in eight is unaware of the infection… Whereas, viral load suppression not only improves individual health, but it also reduces HIV transmission on a population level.” (2019, March)

By addressing the HIV epidemic on a state level and national level, progress will begin to accelerate in each state. Missouri’s Governor has set a great example to other states on how to begin addressing the HIV Epidemic and bring awareness to a virus that had such a “taboo” stigma surrounding it for many years. Many advocates believe this proclamation will save lives and help de-stigmatize HIV for those who still may hold certain negative views around the virus and those who are living with it.

Since 1981, more than 700,000 Americans have lost their battle to HIV (Offices of Infectious Diseases). While the numbers of infections and deaths have declined over the years with the increase of HIV education, the issue remains: those who may spread the virus without knowledge. I truly believe that both the Missouri and National plan to stop the spread of HIV and better educate the general public on the virus will help to destigmatize the disease and help lower the number of cases nationwide.

References:
  • Geographic Priorities. (2020, May 21). Retrieved from https://www.cdc.gov/endhiv/priorities.html?CDC_AA_refVal=https://www.cdc.gov/endhiv/data.html
  • Office of Infectious Disease. (2020, May 8). Overview. Retrieved from https://www.hiv.gov/federal-response/ending-the-hiv-epidemic/overview
  • Resolution In Support of HIV Viral Load Suppression in Improving Health Outcomes and Reducing Transmission. (2019, March). Retrieved from https://nlga.us/wp-content/uploads/Resolution-In-Support-of-HIV-Viral-Load-Suppression-in-Improving-Health-Outcomes-and-Reducing-Transmission-2.pdf
Disclaimer: Guest blogs do not necessarily reflect the views of the ADAP Advocacy Association, but rather they provide a neutral platform whereby the author serves to promote open, honest discussion about public health-related issues and updates.

Thursday, May 21, 2020

Medicaid Block Grant Funding and HIV

By: Marcus J. Hopkins, Policy Consultant & Guest Contributor

For three decades, Republicans at both the state and federal levels have been attempting to convert social services programs, such as Welfare and Medicaid, over to block grant funding systems. One example of this conversion is the Temporary Assistance for Needy Families (TANF) program, created in 1996 and implemented in 1997. More recently, Republicans have been seeking for much of the past two decades to do away with the existing open-ended funding model that supports our current Medicaid system, and replacing it with block grant funding. Since Donald Trump began occupying the White House, Republicans, for the first time in recent memory, had a real chance to begin overhauling programs they felt were flabby and inefficient money pits with the support of a Republican House, Senate, and Executive running full steam behind it.

Those who work in public health, as well as those who work in HIV advocacy and activism, immediately began a campaign against this effort to do away with current Medicaid funding, particularly after winning in 2010 with the Medicaid expansion portion of the Affordable Care Act (ACA). They predict epic funding cuts, a return to wait lists for HIV treatment, and rationing of care that will put a target on the backs of people living with HIV.

Medicaid
Photo Source: WBBJ-TV

The concept of block grant funding has been a popular one in Conservative circles for decades, stretching back to the Nixon Administration, for Republicans, and also with Conservative Democrats, prior to the point when the party’s support of the Civil Rights Act caused said Conservative Dems to flee for redder pastures. Block grant funding, they have argued and continue to argue, allows local jurisdictions (i.e. – states) more “flexibility” to best determine how funds are used, giving states the ability to “innovate” and “experiment” with new approaches to solving various problems in ways that are unique to their population demographics, geography, and local scarcity of resources.

Critics, on the other hand, argue that, in virtually every instance where block grant funding is used, the number of people who can be helped is restricted by the amount of the block grant. Moreover, they argue that block grant funding is not responsive, meaning that funding stays constant without being adjusted to account for exigent circumstances, such as recessions, depressions, natural disasters, health emergencies, local job markets, et cetera.

Essentially, block grant funding works like this:
  1. A legislative body determines the maximum amount of money that can be spent;
  2. The federal department where those grants are housed (e.g. – Housing and Urban Development; Health and Human Services; Health Resource Services Administration, et cetera) comes up with a list of regulations that attempt to define how those grant monies must be used, and on what things they cannot be used;
  3. That body then allocates those funds and distributes them to states in the form of block grant awards, the amount for which are determined using a formula based upon various objective measures, such as (but not limited to) total population, the percentage of residents earning incomes that fall into the various tax brackets based upon tax filing, the number of children living in families that fall into those tax brackets, the cost of living (a calculation that is, itself, woefully outdated and in need of an update), the federal and state minimum wage, median incomes, et cetera ad nauseam;
  4. States receive whatever grant award is decided, and then have relative carte blanche to spend the funds however they see fit, so long as they stay within the federal guidelines of appropriate usage. This includes setting various eligibility standards, annual benefit caps per recipient, lifetime limits on eligibility, and other ways to “save money” while still being able to say that they use the funds as intended by the grantor.
One great example of this type of funding model in action is the Temporary Assistance for Needy Families program.

TANF
Photo Source: cva.ks.gov

In 1996, Republicans in Congress succeeded in dismantling the Aid to Families with Dependent Children (AFDC) program created in 1935 by the Social Security Act, replacing it with the Temporary Assistance for Needy Families (TANF) – a block grant-funded program that has a maximum benefit of two consecutive years and a five-year lifetime limit for beneficiaries.

This setup, Republicans and Neoliberals argued, would serve to “motivate” recipients to get off of the government dole and pull themselves out of poverty. It was deemed a “Welfare-to-Work” model, in which recipients either had to find better paying jobs, or else. Doing so, they argue, will give recipients a sense of pride and accomplishment, and help further their upward social and economic mobility toward the attainment of the American Dream.

In practice, however, the TANF program has had a net negative result for the very reasons opponents of block grant funding warned:
  1. States are allotted a dollar amount that is not adjusted for inflation, meaning that the pot of money they’re given has less spending power, over time. The value of all state TANF grants in 2014 was 30% lower than when those amounts were first allotted in 1997 (Hahn & Coffey, 2017).
  2. State grants for TANF are fixed, meaning that they do not increase (or decreased) based upon changing levels of need. This means that, for each increase in the number of residents who qualify for TANF dollars, the amount available for each recipient decreases (Hahn). 
  3. State grants for TANF also lock in inequality in state funding, because those grant award amounts were determined based upon pre-TANF state spending on welfare-related activities prior to TANF being enacted (Hahn & Coffey). This means that states that spent a lot of money on welfare per capita prior to reform received higher grant amounts, while states that spent the least amount of money were locked into receiving the lowest grant awards until such time as TANF is dismantled or grants are reconfigured.
So, how have states implemented the TANF program and utilized the block grants? The answer is, “Mostly poorly.”

The key feature of the TANF program, proponents argued, was that states could shift the funds freed up when families left welfare for work to childcare or other work supports, where need would increase.  States also could invest more in work programs to reflect the increased emphasis on welfare as temporary and work focused.

That is not what happened:
In TANF’s early years, when the economy was strong and cash assistance caseloads were shrinking, states used the flexibility of the block grant to take some of the funds that had gone as benefits to families and redirect them to child care and welfare-to-work programs to further welfare reform efforts.  But over time, states redirected a substantial portion of their state and federal TANF funds to other purposes, to fill state budget holes, and in some cases to substitute for existing state spending.  Even when need increased during the Great Recession, states were often unable to bring the funds back to core welfare reform services and instead made cuts in basic assistance, childcare, and work programs. (Schott, Pavetti, & Floyd, 2015).
At its outset, 70% of combined federal TANF and state Maintenance of Effort (MOE) funds went for basic assistance to poor families. By 2014, basic assistance represented only 26% of spending (Schott). Moreover, states are using a larger and growing share of TANF funds for “Other” state services by replacing existing state funds, thereby freeing up those existing state funds to be used for purposes unrelated to providing a safety net or job opportunities for TANF recipients (Schott).

With rare exception, the states that use more than 30% of TANF funds on Basic Assistance were Democrat-run (of 11 states in 2014, only Tennessee, Virginia, Alaska, Kentucky, and South Dakota were run by Conservatives). By comparison, the 10 states spending less than 10% on Basic Assistance were all run by Republicans (Schott).

This is largely indicative of a difference in ideological spending priorities between the parties, but is also reflective of attitudes toward assistance for the needy: for the most part, Republican-led legislatures prioritized “Other” spending priorities over providing Basic Assistance to needy families, while Democratic-led assemblies made that spending more of a priority.

After the Great Recession hit, in 2008, most states (both Democratic and Republican) cut state spending on childcare. These cuts reflected more restrictive policies about who could access childcare assistance, rather than being responsive to the need for childcare assistance (Schott).

What Schott and other researchers have found is that the so-called “flexibility” provided to states to address poverty-related spending priorities resulted in fewer innovative programs (such a Welfare-to-Work initiatives), and more spending in areas that did not result in direct assistance for needy families.

TANF is a great predictor of what is likely to occur should the Medicaid program be converted to a block grant-funded model. In practice, what has occurred is that the poorest people still end up receiving less, because TANF is not responsive to real world conditions.

When Republicans once again trotted out the idea of switching Medicaid to a block grant-funded program, public health experts and chronic illness advocates cried out in near unison, “THIS IS A TERRIBLE IDEA!!!”

So unpopular is the term “block grant,” that the Trump Administration rolled out a new and improved rebranding in 2020, calling it the “Healthy Adult Opportunity” program.

See? It’s not a “block grant,” anymore. It’s an “opportunity.”

If this sounds like the same justification used to push welfare reform, that’s because it is. The intent behind this movement is the same: to get as many people off of government assistance programs as possible, regardless of the method or the end results.

Medicaid
Photo Source: HIV Plus Magazine

Medicaid is the largest source of insurance coverage for people living with HIV, estimated to cover 42% of the adult population living with HIV, as opposed to just 13% of the overall adult population. Medicaid spending on HIV also accounts for 30% of total federal spending on HIV care, and is the second-largest source of public financing for HIV in the U.S. Moreover, Medicaid covers a variety of wraparound health services which are important for people living with HIV, including prescription drug coverage, inpatient and outpatient care, and preventive health services (Kaiser Family Foundation, 2019).

While the Healthy Adult Opportunities façade does allow exceptions for medications used to treat behavioral health (read: addiction) and HIV, the decision about whether or not states include those exceptions is left up to the individual states. Even if states do allow for exceptions for HIV, our experience with how the TANF program has been implemented, particularly in Conservative-run states, serves as an excellent omen of things to come:
  • the types of services covered will be cut;
  • states will increase eligibility requirements to make it more difficult to qualify for coverage;
  • enrollment numbers will be capped or frozen to prevent newly-diagnosed people from enrolling in state Medicaid programs, even if they’re eligible;
  • the number and types of drugs covered will decrease, meaning fewer available treatment options will be available for patients;
  • providers will face lower reimbursement levels
  • patients will be required to pay for a larger percentage of covered services. (Molozanov, 2020)
These aren’t theories; they’re based upon example of how various states have attempted to “save money” by reducing how much they spend after they’ve used up their allotted block grant funds. Just like with the TANF program, should states be allowed to “experiment” with Medicaid block grant funding, we will assuredly see similar attempts to “save money.”

The cost of treatment and healthcare is going to rise. With the pandemic outbreak of COVID-19 threatening to throw us into another Great Depression (because, let’s face it – we’re already in the beginning stages of another Great Recession), more people will be in need of coverage from state Medicaid programs as employers attempt to cut costs by furloughing or outright laying off employees, and thereby ending their employer-provided health insurance coverage. Were Medicaid currently funded using a block grant model, those people would be, for lack of a better word, “screwed,” as states would rush to tighten eligibility requirements, reduce the number of covered services, and everything in their power to cut spending on this “entitlement,” regardless of the skin color or political affiliation of eligible citizens.

Even with exceptions for HIV and certain other conditions, evidence has shown, time and again, that, when faced with tough times, states will opt to restrict access to social services programs, whether or not block grant funding is employed. At least with open-ended Medicaid funding, the funds won’t simply stop after a certain point; at least people won’t be faced with lifetime limits on whether or not they can even apply or be eligible.

References:
  • Hahn, H. & Coffey, A. (2017, February 05). What TANF can teach us about block granting social services. Washington, DC: Urban Institute: Urban Wire: Poverty, Vulnerability, and Safety Net. Retrieved from: https://www.urban.org/urban-wire/what-tanf-can-teach-us-about-block-granting-social-services
  • Kaiser Family Foundation. (2019, October 01). Medicaid and HIV. Washington, DC: Kaiser Family Foundation: HIV/AIDS: Medicaid and HIV. Retrieved from: https://www.kff.org/hivaids/fact-sheet/medicaid-and-hiv/
  • Malozonov, D. (2020, January 30). MEDICAID “BLOCK GRANTS” WOULD BE DEVASTATING TO PEOPLE LIVING WITH HIV AND HEPATITIS. Washington, DC: National Alliance of State and Territorial AIDS Directors: Blog. Retrieved from: https://www.nastad.org/blog/medicaid-block-grants-would-be-devastating-people-living-hiv-and-hepatitis
  • Schott, L., Pavetti, L., & Floyd, I. (2015, October 15). How States Use Federal and State Funds Under the TANF Block Grant. Washington, DC: Center on Budget and Policy Priorities: Research: Family Income Support. Retrieved from: https://www.cbpp.org/research/family-income-support/how-states-use-federal-and-state-funds-under-the-tanf-block-grant
Disclaimer: Guest blogs do not necessarily reflect the views of the ADAP Advocacy Association, but rather they provide a neutral platform whereby the author serves to promote open, honest discussion about public health-related issues and updates.

Thursday, May 14, 2020

Bad Medicine Prescribed by the Trump Administration, Putting Health Insurers before Patients

By: Brandon M. Macsata, CEO, ADAP Advocacy Association

Earlier this week the Centers for Medicare & Medicaid Services ("CMS") issued the final Notice of Benefit and Payment Parameters for the 2021 benefit year, also referred to as the 2021 Payment Notice. CMS hailed the announcement as continuing "the Trump Administration's efforts to promote affordability, improve consumer choice, ensure program integrity, and increase market stability," yet it was met with strong criticism from the patient advocacy community. The ADAP Advocacy Association blasted the Trump Administration for putting the deep pockets of the health insurance industry before the needs of patients living with chronic health conditions, such as HIV/AIDS.

Money and Prescription Drugs
Photo Source: Patients Rising Now

Most troubling for patients is the decision allowing health insurance companies to disallow drug manufacturer co-pay assistance programs towards patient out-of-pocket cost sharing and deductibles.
Co-pay savings programs are offered by drugmakers, thereby reducing out-of-pocket costs for patients. Some programs, such as co-pay coupons are typically for "expensive, brand name drugs without a generic equivalent" (Chase, 2019).

According to a statement issued by Carl Schmid, executive director of the HIV+Hepatitis Policy Institute, "In 2018, drug manufacturer copay assistance totaled $13 billion, according to data from IQVIA. The new rule is a complete reversal of the administration's policy announced last year that required copay assistance to count for brand name drugs that do not have a generic."

That sentiment was echoed by Bill Remak, chair of the International Association of Hepatitis Task Forces: "This is a major setback for patients living with viral hepatitis and related diseases and will effectively raise patient costs and reduce access to critical medications. On behalf of the millions of people living with viral hepatitis, we urge the Trump Administration to reverse this rule and not adopt policies that do not count copay assistance toward their deductible and annual out-of-pocket limit. With the COVID-19 pandemic, this move creates even more barriers preventing patients from getting the medications they need."

CANN Tweet

Twitter also was filled with condemnation from the patient advocacy community, including rebukes from the Community Access National Network (CANN) and The AIDS Institute.

The AIDS Institute Tweet

The PAN Foundation warned disallowing co-pay accumulator programs will hurt vulnerable patients by shifting the cost burden over to them.

According to Patients Rising Now ("PRN"), "patient assistance programs are providing free medications, expanding patient support services and increasing access to care as a way to help millions of patients struggling to pay the bills during the COVID-19 pandemic." PRN characterized the decision by CMS as flawed and asked that they reconsider the final rule.

The All Copays Count Coalition - representing a broad spectrum of patient groups - sent a letter to HHS Secretary Azar prior to the final rule urging HHS to reconsider the co-pay provision. It obviously fell on deaf ears because the Trump Administration sided with the greedy health insurers rather than the patients who need the financial assistance.

A copy of the 2020 Final Payment Notice can be downloaded online: https://www.cms.gov/newsroom/press-releases/cms-announces-final-payment-notice-2021-coverage-year.

References:
  • Chase, Lauren (2019, September 16). What Are Manufacturer Copay Cards? GoodRx. Retrieved online at https://www.goodrx.com/blog/what-are-manufacturer-copay-cards/. 
  • Centers for Medicare & Medicaid Services (2020, May 7). CMS Announces Final Payment Notice for 2021 Coverage Year. Retrieved online at https://www.cms.gov/newsroom/press-releases/cms-announces-final-payment-notice-2021-coverage-year.
  • Remak, Bill (2020, May 8). On May 7, 2020, the Centers for Medicare and Medicaid Services (CMS) released its final 2021 Notice of Benefit and Payment Parameters rule. LinkedIn. Retrieved online at https://www.linkedin.com/pulse/may-7-2020-centers-medicare-medicaid-services-cms-released-bill-remak/.
  • Schmid, Carl (2020, May 7). Trump Administration Shocks Patients By Allowing Insurers to Increase Cost of Prescription Drugs. HIV+Hepatitis Policy Institute.
Disclaimer: Guest blogs do not necessarily reflect the views of the ADAP Advocacy Association, but rather they provide a neutral platform whereby the author serves to promote open, honest discussion about public health-related issues and updates.

Thursday, May 7, 2020

Aging with HIV Report Released

By: Brian Hujdich, Executive Director, HealthHIV

Structural Barriers to Care and Social Isolation Identified in HealthHIV's Inaugural State of Aging with HIV™ National Survey

Structural barriers to care and social isolation were identified as the most significant Issues for people aging with HIV, according to HealthHIV's Inaugural State of Aging with HIV National Survey. The survey also identified significant gaps in care coordination and a lack of comprehensive resources for people aging with HIV, complicating the provision and quality of services for this growing population. It is estimated that 70% of people with HIV (PWH) in the United States will be 50 years or older by 2030.

HealthHIV has issued a comprehensive report on the survey, which includes detailed findings and implications on care coordination. The report can be viewed at: www.healthhiv.org/pozitivelyaging. The report identifies the need for increased resources, as well as areas for improvement and best practices. The national survey covers six key areas: care coordination; HIV management; provider interaction; healthcare expenses; pharmacy usage; and aspects of living with HIV for PWH over the age of 50.

State of Aging with HIV

Key survey findings by topic include:

Care Coordination
Structural and financial barriers are negatively impacting care coordination. One quarter of respondents experience lack of convenient appointment times, long wait times, insurance coverage, and cost of care. 14% had difficulty paying for medication and 12% had difficulty paying for provider visits.

HIV Management
Over half of respondents live with at least one comorbid condition; experience depression and have high cholesterol. Although engaged in routine care, respondents indicated that when their HIV and primary care provider are the same person, they are less likely to receive treatment for comorbid conditions such as asthma, kidney disease and diabetes. 50% reported experiencing stigma, 25% reported ageism, and 24% reported homophobia when accessing healthcare.

Interactions With Providers
Three quarter of respondents have seen a HIV care provider in the last six months and over half also have seen a primary care provider in the last six months.

Healthcare Expenses
One quarter reported cost and the lack of in-network provider insurance coverage as barriers to seeking care.

Pharmacy Usage
The majority of respondents are likely to contact a pharmacist with medication issues.

Aspects of Living with HIV for PWH over the age of 50
One quarter have experienced survivor's syndrome and nearly half felt lonely or isolated within the past two weeks (at time of survey).

Struggles with lack of social support and isolation persist. One-third of respondents indicated lack of an emotional support system. Survey findings also indicate that providers may need additional training to conduct fully comprehensive assessments of the additional services PWH over the age of 50 need.
"The broader care coordination implications show that we need to leverage program activities to creatively and comprehensively respond to the health inequities that impact people aging with HIV," said HealthHIV's Executive Director Brian Hujdich. "These findings suggest that this community requires additional resources to address social support, depression and isolation. People aging with HIV still manage the burden of survivors' syndrome, stigma, and feelings of isolation, which is especially concerning in the context of the COVID-19 pandemic and the need for physical distancing."
 "The impact of both ageism and HIV stigma compounds the problem of care coordination for this community,"
said Pozitively Aging Program Manager Lisa Frederick.
About the Survey:

The national survey was conducted with 1,086 respondents from July 16, 2019 to August 12, 2019. The survey was distributed using survey monkey and no incentive was provided. The respondents were people living with HIV over the age of 50 representing 39 U.S states and Puerto Rico. The majority of respondents were lower income, 60% White, 21% Black, 12% Latino, 6% Multi-Racial with smaller percentages from Asian American, American Indian and Pacific Islander. The gender makeup was 66% gay, 22% heterosexual, 5% bisexual, 2% queer, 1% two-spirit and other 2%.

Key findings from the survey will inform the development of enhanced programs and services focused on improving care coordination for people aging with HIV.

About the Pozitively Aging Program:

HealthHIV's Pozitively Aging program is part of Gilead's Age Positively Initiative and seeks to improve access to quality services and care coordination for PWH over 50. As this community continues to grow, health outcomes can be improved and sustained for PWH over 50 by enhancing care coordination/access, health literacy, and the co-management of conditions associated with aging with HIV through data collection and medical education. Pozitively Aging offers consumer education materials to strengthen self-management of care and address health literacy challenges. The program engages consumers, HIV specialists, primary care providers, and gerontology specialists to inform these education efforts and capacity building activities.

The HealthHIV's Inaugural State of Aging with HIVTMnational survey report can be accessed at healthhiv.org. To download the full report, click here: www.healthhiv.org/pozitivelyaging.

For more information about the Pozitively Aging program, please email lisa@healthhiv.org, call 202-507-4733, or visit healthhiv.org.

Disclaimer: Guest blogs do not necessarily reflect the views of the ADAP Advocacy Association, but rather they provide a neutral platform whereby the author serves to promote open, honest discussion about public health-related issues and updates.

Thursday, April 30, 2020

Coronavirus-Related Blood Shortages Lead to Blood Donor Reforms, But Discrimination Remains

By: Sarah Hooper,  intern, ADAP Advocacy Association, and rising senior at East Carolina University

Since the outbreak of Coronavirus, decisions have been made within the government on many topics including financial relief for students, unemployment and others. One of these decisions involves blood donations. On April 2, the U.S. Food and Drug Administration ("FDA") revised their guidelines which previously banned gay men from donating blood for a year after sexual intercourse with another man.

In these new guidelines, the FDA has instead recommended a three month wait period for these men. This will remain in place throughout the course of COVID-19 or within 60 days of the emergency being lifted, according to The Hill.

The national blood supply has been critically low, according to The Red Cross. Pleas for donations from healthy donors have been made within the past years, but with the recent outbreak of COVID-19, the need is much greater now.

According to their website, the American Red Cross provides roughly 40% of the nation’s blood and blood components, all volunteer based. Group O- blood is the most highly sought-after blood group, because it is universally accepted by other blood types.


The recent change in FDA guidelines to allow men who have sex with men to donate blood after 3 months may seem as better than the previous guidelines, which it is. However, this recent guideline change has revealed many issues with the blood donation program in America.

It was only in December of 2015 that the FDA moved their lifetime ban on gay and bisexual men donating blood to a one year wait period.

“Blood centers nationwide screen potential donors by asking a set of questions written to determine risk factors that could indicate possible infection with a transmissible disease, such as HIV or hepatitis. According to the FDA, this pre-screening eliminates up to 90% of donors who may be carrying a blood-borne disease,” the Human Rights Campaign said.

This raises the question: if screening donors is already a universal concept in blood donation, why should gay men have to wait a period of time to donate blood? Even if a gay man had sexual encounter with an HIV positive person, if they went through the pre-screening process for blood donation and reported either they had sex with another man who they were unsure of their sexual history and/or they had sex with a man who they are sure is HIV positive, wouldn’t that eliminate the risk there?

The American Red Cross tests all donated blood after donations for infectious diseases, but it may not be 100% effective in donors who may have been infected with a blood-borne pathogen recently.

However, if a gay man has taken the necessary precautions to protect against transmission of blood-borne diseases such as HIV or hepatitis, I see no reason as to why they cannot safely donate blood- especially in a time of crisis and a national shortage.

In an article written for USA Today, David Oliver spoke on issues he’s faced as a gay man attempting to donate blood amid Coronavirus.

“The first and only time I donated blood; I hadn't had sexual contact with another man. Heck, I hadn’t yet come out. I was 21 years old and passed out shortly after doing it. Over the six years since then, it has been too easy for me to throw my hands up and say: "Well, I can't even donate anyway." But during this time of crisis, I would give anything to help,” Oliver said.

This narrative is all too common among LGBTQ+ men. The need for blood is greater than ever, and if screening processes are taken and donors are open about their past possible exposure to pathogens, I see no reason as to why this blood shortage could not be addressed by all Americans.

Photo Source: Change.org

“The American Red Cross believes blood donation eligibility should not be determined by methods that are based upon sexual orientation. We are committed to working toward achieving this goal,” The American Red Cross said.

The goal of blood donation eligibility not being based upon sexual orientation is an achievable one. Americans must look past their ignorance and outdated ideas of LGBTQ+ men and blood donation to help the greater good.

References:
  • Blood Needs & Blood Supply. (n.d.). Retrieved from https://www.redcrossblood.org/donate-blood/how-to-donate/how-blood-donations-help/blood-needs-blood-supply.html
  • Human Rights Campaign. (n.d.). Blood Donations and the LGBTQ Community. Retrieved from https://www.hrc.org/resources/blood-donations
  • LGBTQ Donors. (n.d.). Retrieved from https://www.redcrossblood.org/donate-blood/how-to-donate/eligibility-requirements/lgbtq-donors.html
  • Oliver, D. (2020, March 30). Red Cross is asking for blood donations amid coronavirus. Because I'm gay, I'm excluded. Retrieved from https://www.usatoday.com/story/opinion/voices/2020/03/20/coronavirus-let-lgbtq-men-donate-blood-amid-shortage-column/2876677001/
  • Weixel, N. (2020, April 2). FDA loosens restrictions on gay men donating blood amid pandemic. Retrieved from https://thehill.com/homenews/administration/490824-fda-loosens-restrictions-on-gay-men-donating-blood-amid-coronavirus#.XoYgEQB4AkA.twitter
Disclaimer: Guest blogs do not necessarily reflect the views of the ADAP Advocacy Association, but rather they provide a neutral platform whereby the author serves to promote open, honest discussion about public health-related issues and updates.

Thursday, April 23, 2020

Despite Coronavirus, Trump Administration Proposes 15 Percent Cut To HOPWA Funding

By: Marcus J. Hopkins, Policy Consultant & Guest Contributor 

UPDATE: This piece was authored prior to the passage of the Coronavirus Aid, Relief, and Economic Security (CARES) Act, on March 30th, 2020. This Act included $65 million in additional funding for the HOPWA program. As a result of these additional funds, the “$80 million” cut to the HOPWA program proposed by the Trump Administration will be temporarily abated (assuming that the proposed cut makes it into the annual budget bill).

It should be noted that this $65m is a one-time infusion of funds included only in the CARES Act, and is unlikely to be a permanent fixture in future budgets. The Trump Administration is still proposing the $85m cut to the overall budget.

There are currently efforts underway by HIV advocates and activists to include an additional $65 million in funds in the forthcoming fourth stimulus bill related to COVID-19.

The Trump Administration is, once again, demonstrating its attempt to end social safety nets via deaths by 1,000 cuts. In its latest budget proposal, the Trump Administration is proposing $8.6 billion in funding cuts for the HUD (Housing and Urban Development) program, including $80 million cut from the Housing Opportunities for People With AIDS (HOPWA).

President Donald J. Trump
Photo Source: New York Magazine

HOPWA was created in the AIDS Housing Opportunities Act, as part of the Cranston-Gonzales National Affordable Housing Act of 1990, and has consistently been one of the best-intentioned, but worst funded, managed, and disbursed elements of the various HIV-specific social safety net programs. Plagued by mismanagement at both the federal and state levels, in no small part because of the way the program is administered.

Unlike the overall Ryan White Program, which applies to virtually anyone in a state living with HIV, so long as they meet income verification and upper limit requirements, the HOPWA program operates through the HUD program via a series of grants and relies upon the availability of Section 8 low-income housing.

For example, when I lived in Los Angeles and was in need of a new housing situation when I was separating from my partner, I attempted to sign up for HOPWA via my Ryan White caseworker, only to find that there was, at the time, a waiting list of several years in order to qualify for a Section 8 voucher. What this meant was that, in effect, there were no available Section 8-eligible units available, and I would have to enter my name on a wait list. Should a unit become available, a call would go out, and whomever got there first and qualified was the lucky recipient of a place to live.

This is just on the front-end of HOPWA, however; on the back-end, where the program is administered by state and local governments, inefficiencies, personal and local politics, and failures to may payments to programs on time have created huge issues for people whose housing depends upon the program. There are few places where this is truer than Atlanta, GA:

The City of Atlanta failed to spend $41 million since 2014 meant for the HOPWA program in a dispute involving unpaid contractors, unspent development funds, and a multi-year failure to properly allocate and disburse funds. As a result, in the summer of 2019, hundreds of People Living with HIV/AIDS (PLWHA) were facing eviction as Living Room, the non-profit contractor with whom the City of Atlanta had contracted with to connect PLWHA with low incomes to safe, affordable housing, declared bankruptcy and closed.

Living Room announced in June 2019 that it was unable to pay the rents for roughly 250 clients because the City of Atlanta was several months late in disbursing $500,000 in reimbursement funds for expenses. As a result, those clients’ landlords filed for eviction, resulting in the Atlanta Legal Aid Society being swamped with requests for assistance to the point where they set up a special team just to address the issue. The city responded by paying $371,600 (Mariano, 2019), but those funds arrived too late for Living Room to continue operating.

The problems did not, however, originate with the current administration (Mayor Keisha Lance Bottoms); even when she stood for election in 2017, payments from the City of Atlanta to nonprofit contractors ran so late that many had to borrow against lines of credit and stop taking on new clients (Mariano). Bottoms, who vowed to get to the bottom (as it were) of why these programs were shutting down due to unpaid reimbursement requests has largely failed to live up to the promises she’s made over the past three years, in no small part because her administration has fundamentally failed to properly propose, explain, and implement changes in a timely manner, or to satisfaction of HUD, which has repeatedly expressed public concerns about the administration of Atlanta’s HUD grant.

The problems also do not stop in Atlanta. The HOPWA program has consistently been underfunded and unable to address the needs of PLWHA. The original language in the program focused primarily on people living in urban areas, but changes began, in 2015, to address the needs of PLWHA living in suburban and rural areas. Unfortunately, none of those changes have effectively increased the amount of funding needed, nor increased the availability of housing units.

Where other countries address low-income housing by building government-owned/operated council flats or apartment buildings, the U.S. has stubbornly (and stupidly, in my opinion) insisted upon “public/private partnerships” to address Section 8 housing, relying upon individual property companies and landlords to supply housing and qualify for/accept Section 8 vouchers. This is, no doubt, an artifact of the “Socialism Scare” of the 1950s and beyond, where any sort of social safety net or housing program was deemed “Creeping Socialism” that would doom the U.S. to become a Communist hellhole with never ending breadlines and (shudder) paying to support the Poors.

Housing Is Healthcare

This decades-long failure on the part of federal and state governments to purchase land and build public housing sufficient to meet the needs of lower-income individuals and families (because, why that just wouldn’t generate a profit, you Pinko Commie bastard!) has resulted in an affordable housing crunch exacerbated by municipalities’ [stupid] desire to approve and build only “luxury” housing units that are, in actuality, little different from the medium-range housing units that were built in the late-90s and early-00s, but have the word “luxury” slapped on the development so that they can increase property values and rents.

In rural states, HOPWA funds are largely allocated in the more densely populated regions, where housing is already overpriced and affordable housing is unavailable. This means that people who could find housing outside of these areas are unable to do so, because the HUD grant for HOPWA only covers people if they live inside of those areas…where housing is over-priced and unavailable, creating waiting lists, backlogs, and people struggling to figure where to live and work, all while attempting to manage their HIV and achieve and maintain viral suppression.

In short, even before the proposed budget cuts for HOPWA (for the second consecutive year), HOPWA is a mess of an operation that is in desperate need of nationalization, centralization, and a massive increase in funds to continue to exist.

Disclaimer: Guest blogs do not necessarily reflect the views of the ADAP Advocacy Association, but rather they provide a neutral platform whereby the author serves to promote open, honest discussion about public health-related issues and updates.

Thursday, April 16, 2020

Preventing Rx Medications from becoming the next toilet paper during the Coronavirus Pandemic

By: William E. Arnold, President & CEO, Community Access National Network (CANN)
       Shabbir J. Safdar, Executive Director of the Partnership for Safe Medicines
       Brandon M. Macsata, CEO, ADAP Advocacy Association

If you are taking a life-saving HIV medication right now, or any kind of life saving medication, you probably have two big concerns: “Can I afford my medicine if my economic status changes?” and “Will my medicine be in short supply? Will people do to medicines what they have done to toilet paper?”

Toilet paper aisle empty at grocery store
Photo Source: USA Today

If you are concerned about affording medication, we strongly suggest exploring the tips in our COVID-19 one pager [English PDF, Spanish PDF] where we talk about the options offered by NeedyMeds, RXOutreach, and MedicationAssistanceTool.

If you are concerned about supply, don't turn to the wild west of foreign web pharmacies. That's more dangerous now than ever. Online scammers pretending to be Canadian, or in some cases actual Canadian criminals, have been perfecting their perfect-looking counterfeits and their fake-but-real looking web pharmacies for twenty years. You can find safe, U.S.-licensed online pharmacies at www.safe.pharmacy. No foreign pharmacy (even if it’s licensed in a trustworthy foreign country, like Canada) is safe for Americans to buy from.

But the good news is that you probably won’t have to. The American Medical Association has warned physicians against non-medically necessary prescribing to enable panic-buying. And pharmacy boards like those in Idaho, Texas, Nevada, West Virginia, and Ohio are tightening rules around prescriptions of medications, especially medicines like chloroquine, which may or may not be effective treatments for COVID-19. (For your reference, the National Alliance of State Pharmacy Associations is keeping a continuously updated list of state actions affecting Hydroxychloroquine, Chloroquine, and Azithromycin).

In the HIV space, ADAP Advocacy Association has published statements from nearly all the major manufacturers explaining that their supply is secure for the next twelve months, so panic-buying your medication is not advised, and if we all did it, would create a shortage where one does not exist today.

Drug Supply Chain
Photo Source:  master control.com

Ok, but what if I’m still concerned about making sure I’ve got enough medication for myself?

Talk to your pharmacist (and if you don’t do that often, go meet your pharmacist)
Call your pharmacist. If you can’t get them on the phone, you can go see them, but in this time of social distancing they would probably prefer a phone call. If you don’t have a relationship with your pharmacist this is a great time to begin one.

Let your pharmacist know about your medication needs for the next three to six months. If everyone orders a year’s supply of medication at once, the rush could create shortages. If your pharmacist knows about your needs, they can take them into account when they are ordering stock.

Plan to refill your prescription a ten-days ahead of time
If there is a shortage, your pharmacist has options to secure enough medicine for you, but they will need enough time to work it out. If you go in ten days ahead of time, that will give your pharmacist enough notice. If your insurance doesn’t allow you to refill ten days out, then call your pharmacist ten days out to let them know you’ll be coming in for a refill.

Ask your prescriber and pharmacist about a 90-day prescription
If you want to minimize trips to the pharmacy during this time, ask your prescriber about writing you a prescription for a 90-day supply instead of 30 days. Your pharmacist can tell you in advance if your insurance will cover a 90-day prescription before you even contact your physician.

Pharmacists and pharmacy techs may be the healthcare professionals you see the most often, and they know a great deal about medicine, the supply chain, and the best way to help you afford your medications. But they are working long stressful hours right now instead of sheltering at home---and they may need a little bit of planning to be your best ally.

Disclaimer: Guest blogs do not necessarily reflect the views of the ADAP Advocacy Association, but rather they provide a neutral platform whereby the author serves to promote open, honest discussion about public health-related issues and updates.